By Institute of Medicine, Board on Health Care Services, National Cancer Policy Forum, Margie Patlak, Sharon Murphy
The IOM's nationwide melanoma coverage discussion board held a workshop October 5-6, 2009, to envision tips to follow the concept that of a 'rapid studying wellbeing and fitness approach' to the matter of melanoma. This record summarizes the workshop.
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Additional resources for A Foundation for Evidence-Driven Practice: A Rapid Learning System for Cancer Care: Workshop Summary
For those that do, screening reminders and alerts provided by exchange tools have led to measurable improvements in cancer care. Participation in the exchange has also boosted patient participation in clinical trials threefold, Todd pointed out. ” The collection of patient-reported outcomes also will expand the usefulness of cancer registries, several speakers noted. Dr. Clancy suggested that more effort be made to gather patient-reported outcomes, not just during treatments but in between or after treatments.
The next planned step in this project is creation of a prototype “Consolidated Georgia Cancer Data Resource” that will represent a linkage of these bilateral linked data sets with the GCCR at the hub (see Figure 3-1). Eventually, researchers hope to expand the project to include biomarker data from state and SEER biorepositories and patient-reported outcomes, such as quality-of-life assessments, satisfaction with care, and burden of symptoms. All the datasets linked in this project will be stripped of their patient identification features, so as to preserve patient privacy, and will be subject to rigorous quality checks.
The American Recovery and Reinvestment Act also provided funding for an IOM study to determine the high-priority healthcare conditions and interventions to guide the spending of the portion of the ARRA funds allocated to CER (IOM, 2009a). After gathering stakeholder input, the IOM Committee on CER, which Dr. Sox co-chaired, developed a list of 100 priority topics on which CER should be conducted, which included comparing the effectiveness of dissemination and translation techniques to facilitate the use of CER by patients, clinicians, payers, and others.
A Foundation for Evidence-Driven Practice: A Rapid Learning System for Cancer Care: Workshop Summary by Institute of Medicine, Board on Health Care Services, National Cancer Policy Forum, Margie Patlak, Sharon Murphy